independent

Thursday 19 September 2019

Fund raiser for four-year-old Wexford boy

Four-year-old Johnny Murphy.
Four-year-old Johnny Murphy.
Paul McGrath

By David Tucker

A BENEFIT night in aid of a four-year-old Wexford boy who has never been able to eat or drink is due to take place at the Hotel Curracloe on Saturday January 31.

Among those helping young Johnny Murphy is Paul McGrath who auctioned a signed Aston Villa jersey for €500 on twitter on Sunday.

Johnny needs life-changing surgery at Great Ormonde Street Hospital in London and will need to go back and forth to the UK every few months, putting a huge financial strain on his family.

'He will be the youngest person to have a gastric pacer in his tummy,' said his mother Sabrina.

Johnny lives in Oak Park, Ballymurn with Sabrina, his dad John and older sister and brother, Jason, aged six, and Lily, aged eight.

Music at the fundraiser, which begins at 8.30 p.m., will be by the Shindigs and Na Buachalli. There will be an auction of jerseys and signed sports items on the night by Tom Dempsey.

Great door and raffle prizes will be on offer including an Ipad, 42 inch Smart TV, day spa for 2 at Monart and loads more. Lots of local businesses have been very kind in their support.

Tickets are €10 and they are available from SmokeFree Ireland Kiosk in Tesco, Crossabeg Childcare Centre, Crowning Glory hair salon or by contacting 'Johnny Murphy Benefit Night' on facebook. Tickets will also be available on the door.

Life for Murphy family is difficult, with Johnny vomiting at least five times a day and sometimes up to 30.

'He suffers severe pain in his stomach, arms and legs,' said Sabrina, 'he carries a bag on his back and is fed through a tube between 17 and 24 hours a day.'

Johnny, who can't eat normally because his stomach is paralysed, has just been diagnosed with another condition which means that the last 20cm of his colon has no motor function.

'The operation at Great Ormond Street could mean anything from reducing his pain and vomiting to the extreme that he could end up without a tube,' Sabrina told this newspaper.

Before Johnny goes to Great Ormonde Street, he has to have a preparatory procedure carried out at Crumlin Children's Hospital early next month.

Wexford People

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